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Prader-Willi Syndrome

At Consensus, we understand the unique needs of individuals with PWS and the effect this has on a person’s day-to-day life. Through person-centred planning, and education, our approach focuses on structured routines, behaviour management strategies, and a healthy lifestyle to promote physical and emotional wellbeing.

Tailoring every moment to each individuals needs, we strive to enable the people we support to embrace all life has to offer, and reach their full potential.

What is PWS?

Prader-Willi Syndrome is a rare genetic condition that affects around 2000 people in the UK. It comes from an abnormality of chromosome 15, and affects appetite, growth, metabolism, and behaviour. Individuals with Prader-Willi Syndrome may also experience developmental delays, learning difficulties and behavioural challenges that can impact their day-to-day life.
Key characteristics of PWS are commonly seen as an increase in excessive appetite and overeating, life debilitating weight gain, alongside delayed development leading to emotional and social immaturity.

How do we support?

Through our various PWS specialist homes, we work together with individuals to not only develop healthy relationships with food, but to educate those with PWS on how we can work together to manage the unique challenges they face. From learning about portion sizes to making their own food, our approach is focused on supporting those to have independence, choice, and control over their life.
With emotional & behavioural challenges, we work alongside our Positive Behaviour Support team to implement changes that have a positive impact to those we support, enabling individuals to enjoy each moment in a way that’s unique to them.

PWS & Consensus

Over the past 10 years, Consensus has proudly supported over 200 people with PWS. Our commitment to best practice and developing positive relationships with food has enabled us to support individuals with PWS, with 4 out of our 12 specialist homes achieving an Outstanding rating from CQC.

Maximum Choice

Allowing those we support to have control over their life.

Healthy Lifestyle

Creating positive relationships with food & having a balanced diet.

Education

Teaching awareness of the affects of PWS for those with the condition.

Supporting people with PWS across Consensus

Enjoy some of the latest stories that showcase how we're supporting people with PWS to embrace everything life has to offer, as well as how we're ensuring our colleagues complete training to better support and understand those with PWS.

Amazing Stories

The Prader-Willi Syndrome Academy; cura...

Where every moment matters, our Learning & Organisational Development team have been expanding th...
Amazing Stories

Keith's journey at Clare House

Keith’s journey at Clare House began back in September 2017, when he made the brave decision to g...
Amazing Stories

The new Gretton PWS breakfast bar

The fabulous people living at Gretton House have always liked to challenge perceptions about what...

Find a PWS service

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